Description of Collaborative Activity: |
This project is related to development of a repository and search tool for identification of Common Data Elements (CDE) for Patient-Centered Outcomes Research. Led by NLM, a work-group of the Trans-NIH BioMedical Informatics Coordinating Committee (BMIC) and others are working to promote data sharing and reuse and use of electronic health record (EHR)- derived data among the PCOR community supported by NIH and other Federal organizations. Work has produced a portal of NIH projects that use CDEs and, with the assistance of funding to develop data infrastructure to promote patient-centered outcomes research (OS PCOR Trust Fund), will contribute to development of a search, retrieval, and repository mechanism that will support and reflect the standards work of the S&I Framework Structured Data Capture Initiative. |
NIH Participating Institutes/Centers/Office of the Director: |
CC, CIT, NCATS, NCI, NEI, NHGRI, NHLBI, NIA, NIAID, NIAMS, NICHD, NIDA, NIDDK, NIEHS, NIMH, NINDS, NINR, NLM, OD/OER |
