Title of Collaborative Activity: |
National Amyotrophic Lateral Sclerosis Registry (National ALS Registry) |
Description of Collaborative Activity: |
The National ALS Registry is a congressionally mandated registry for persons in the US with ALS. It is the only population-based registry in the US that collects information to help scientists learn more about who gets ALS and its causes. |
Type of Collaborative Activity: |
Committee, Advisory Group, or Work Group
|
Year the Collaborative Activity Originated: |
2011 |
NIH Participating Institutes/Centers/Office of the Director: |
NINDS |
HHS Agency Collaborators on this Activity: |
ATSDR, CDC |
