Description of Collaborative Activity: |
Much scientific and policy value could be generated from observational studies which could be based, at least in part, on available CMS data. NIH and CMS established a Data Access Committee to identify and pursue immediate priorities. The Committee has been meeting monthly for the past year. Working Groups are focusing on: a) Identification of data and endpoints in NIH supported trials which would be useful to CMS; b) Identification of types of CMS data and linkages that could prove useful to NIH-supported investigators; c) Design and operation of data enclaves, trusted entities status, and other data security measures; d) Strategies for informing communities of available CMS data, and CMS staff contacts; e) Anticipating natural experiments (e.g. health care reform, geographic variation)
Current initiatives include planning a workshop on enclave development and data linkage, aimed at gathering input from researchers who use CMS data; exploring options for jointly establishing a virtual laboratory at Oak Ridge National Labs, and developing an Early Alert System for CMS regarding Anticipated High Impact Clinical Research Findings, using clinicaltrials.gov. |
NIH Participating Institutes/Centers/Office of the Director: |
CC, NCCAM, NCI, NCATS, NEI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIMH, NIMHD, NINDS, NINR, NLM, OD |
