Collaboration Details

Print  Close


Title of Collaborative Activity:

Think Tank on the Identifiability of Biospecimens and “-Omic” Data

Description of Collaborative Activity:

Concerns regarding the potential identifiability of individuals from genomic or other "-omic" data, and from donated biospecimens coupled with publicly accessible information, have given rise to privacy policies and data security requirements which could limit the pace of progress in cancer research. The NCI Think Tank on the Identifiability of Biospecimens and "-Omic" Data was a 2-day workshop that gathered experts from various disciplines: researchers, ethicists, privacy law experts, patient advocates, and industry representatives, to review the state of the science and to explore the ramifications of suggested policy alternatives.

Type of Collaborative Activity:

Select Type of Collaborative Activity

Year the Collaborative Activity Originated:

2012

NIH Participating Institutes/Centers/Office of the Director:

NCI, NHGRI

HHS Agency Collaborators on this Activity:

FDA, OS