Collaboration Details

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Title of Collaborative Activity:

Patient-Reported Outcomes Measurement Information System (PROMIS)

Description of Collaborative Activity:

The Patient-Reported Outcomes Measurement Information System (PROMIS) is a network of National Institutes of Health-funded primary research sites and coordinating centers working collaboratively to develop a series of dynamic tools to reliably and validly measure patient-reported outcomes (PROs). PROMIS provides an opportunity to improve healthcare outcomes by giving decision makers hard data on how healthcare affects what patients are able to do and how they feel. The U.S. Food and Drug Administration has been invited to contribute to the scientific steering committee meetings as an interested partner. The Centers for Medicare and Medicaid Services, Centers for Disease Control and Prevention, and Substance Abuse and Mental Health Services Administration are working with PROMIS to coordinate use of PROMIS tools in programs of mutual interest.

Type of Collaborative Activity:

Research Initiative

Year the Collaborative Activity Originated:

2004

NIH Participating Institutes/Centers/Office of the Director:

NCCAM, NCI, NHLBI, NIAID, NIAMS, NICHD, NIDA, NIDDK, NIGMS, NIMH, NINDS, OD/DPCPSI, OD/DPCPSI/OSC

HHS Agency Collaborators on this Activity:

CDC, CMS, FDA, SAMHSA