Description of Collaborative Activity: |
Led by NLM, a work-group of the Trans-NIH BioMedical Informatics Coordinating Committee (BMIC) and others are working to promote the use of common data elements in research, surveillance, and patient registries to facilitate data sharing and reuse. Work has produced a portal of NIH projects that use Common Data Elements (CDEs) and, with the assistance of funding to develop data infrastructure to promote patient-centered outcomes research (OS Patient-Centered Outcomes Research Trust Fund), will contribute to development of a search, retrieval, and repository mechanism that will support and reflect the standards work of the Standards & Interoperability (S&I) Framework Structured Data Capture Initiative. This project contributes to efforts to develop a repository and search tool for identification of CDEs for Patient-Centered Outcomes Research. |
NIH Participating Institutes/Centers/Office of the Director: |
CC, CIT, NCATS, NCI, NEI, NHGRI, NHLBI, NIA, NIAID, NIAMS, NICHD, NIDA, NIDDK, NIEHS, NIMH, NINDS, NINR, NLM, OD/OER |
