Collaboration Details

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Title of Collaborative Activity:

Structured Data Capture (SDC) Initiative

Description of Collaborative Activity:

The Structured Data Capture (SDC) Initiative is sponsored by the Department of Health and Human Services, Office of the National Coordinator (ONC), as part of the Standards and Interoperability Framework, a program developed to foster collaboration between the public and private sectors to promote interoperable exchange of health data and information. The SDC mission is to develop and validate a data architecture and exchange standards so that a structured set of data can be accessed from electronic health record systems, merged with comparable data and made accessible for purposes other than clinical care, such as research, patient safety and public health. The SDC Working Group on Common Data Elements and Forms, chaired by NLM/NIH with NCI/NIH participation, evaluated and selected two ISO standards to serve as the basis for definitions of Common Data Elements and electronic Case Report Forms (eCRF) under the initiative: ISO/IEC 11179 (Metadata Registries and Data Elements metamodel) and ISO/IEC 19763-13 (Forms metamodel).

Type of Collaborative Activity:

Resource Development

Year the Collaborative Activity Originated:

2013

NIH Participating Institutes/Centers/Office of the Director:

NCI, NLM

HHS Agency Collaborators on this Activity:

AHRQ, CDC, CMS, FDA, HRSA, IHS, OS