Collaboration Details

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Title of Collaborative Activity:

Technologies for Donating Medicare Beneficiary Claims Data to Research Studies

Description of Collaborative Activity:

This project is a collaboration between NIH and CMS to leverage the Sync for Science™ (S4S) and Blue Button® API (BB API) programs to enable Medicare beneficiaries to donate their medical claims data for scientific research studies using S4S data donation workflow. NIH will be the lead agency, developing the technical guidelines and CMS will contribute significant support by converting the Medicare claims to HL7’s Fast Healthcare Interoperability Resources (FHIR®) data standard and adapting the BB API to allow Medicare beneficiaries to donate up to three years’ worth of their Medicare claims data to align with the S4S specification.

Type of Collaborative Activity:

Research Initiative

Year the Collaborative Activity Originated:

2017

NIH Participating Institutes/Centers/Office of the Director:

OD/AoU

HHS Agency Collaborators on this Activity:

CMS, OS