Collaboration Details

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Title of Collaborative Activity:

National Amyotrophic Lateral Sclerosis (ALS) Registry

Description of Collaborative Activity:

The National ALS Registry is a congressionally mandated registry for persons in the US with ALS. It is the only population-based registry in the US that collects information to help scientists learn more about who gets ALS and its causes.

Type of Collaborative Activity:

Resource Development

Year the Collaborative Activity Originated:


NIH Participating Institutes/Centers/Office of the Director:


HHS Agency Collaborators on this Activity: