Collaboration Details

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Title of Collaborative Activity:

Childhood Cancer Data Initiative (CCDI), National Childhood Cancer Registry (NCCR)

Description of Collaborative Activity:

The NCCR has been established by relying on a core of registry data from 1995 forward for all cancers diagnosed in children aged 0-19. NCI SEER and CDC NPCR registries are submitting population-based registry data and this is linked with a variety of other data sources (e.g., claims, molecular characterization, pharmacy, Virtual Pooled Registry, research studies, SDoH, Cancer Center supplements) to obtain a longitudinal understanding of treatment, procedures, risk factors, and outcomes.

Type of Collaborative Activity:

Resource Development

Year the Collaborative Activity Originated:


NIH Participating Institutes/Centers/Office of the Director:


HHS Agency Collaborators on this Activity: