Title of Collaborative Activity: |
International Rare Diseases Research Consortium (IRDiRC) Funders' Committee |
Description of Collaborative Activity: |
The International Rare Diseases Research Consortium (IRDiRC) teams up researchers and organizations investing in rare diseases research in order to achieve two main objectives by the year 2020, namely to deliver 200 new therapies for rare diseases and means to diagnose most rare diseases. A number of grand challenges are being addressed through collaborative actions to reach these 2020 goals such as establishing and providing access to harmonized data and samples, performing the molecular and clinical characterization of rare diseases, boosting translational, preclinical and clinical research, and streamlining ethical and regulatory procedures. |
Type of Collaborative Activity: |
Committee, Advisory Group, or Work Group
|
Year the Collaborative Activity Originated: |
2011 |
NIH Participating Institutes/Centers/Office of the Director: |
NCATS, NCI, NEI, NHGRI, NIAMS, NICHD, NINDS |
HHS Agency Collaborators on this Activity: |
FDA |
