Title of Collaborative Activity: |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) |
Description of Collaborative Activity: |
The purpose of this project is to develop, validate and disseminate a patient-reported outcome measurement information system incorporating Patient Outcomes Measurement Information System (PROMIS) methods. The NHLBI contributes funding to the NIH Common Fund for scientific administration of PROMIS and has funded the ASCQ-Me as a sickle cell-specific research tool to be used in conjunction with PROMIS. |
Type of Collaborative Activity: |
Research Initiative
|
Year the Collaborative Activity Originated: |
2005 |
NIH Participating Institutes/Centers/Office of the Director: |
CC, NCCAM, NHLBI, NIAMS, NICHD |
HHS Agency Collaborators on this Activity: |
FDA |
