Resource Development

Collaboration Title	Collaboration Type	HHS Participating Agencies	NIH Participating Institutes/ Centers/ Office of the Director	Year Collaboration Originated
AccessGUDID	Resource Development	FDA, GDM		2015
Alaska Native Tumor Registry	Resource Development	CDC, IHS		1999
Americas Children Forum on Health and Family Statistics	Resource Development	SAMHSA	NIDA	1994
Analytical Methods and Reference Materials Program (AMRM)	Resource Development	FDA	NCCIH, NCI, NIDDK	2002
Antiretroviral Pregnancy Registry	Resource Development	CDC	NICHD	1989
Assessing the Burden of Diabetes by Type in Children, Adolescents, and Young Adults Network (DiCAYA)	Resource Development	CDC		2020
Bench to Bedside: Integrating Sex and Gender to Improve Human Health	Resource Development	FDA		2017
Build UP Trust Challenge Prize	Resource Development	CDC, HRSA, OASH	NIMHD, NCI, NIA, NIAID, NIEHS, NINDS, NCATS, NIAMS, NIBIB, NIDA, NICHD	2021
CCDI Molecular Target Platform	Resource Development	FDA		2021
CDC Integration with GrantSolutions	Resource Development	ACF, CDC	OD/ OER	2016
CDC-NIH Lyme Disease Serum Sample Repository	Resource Development	CDC, OS	NIAID	2008
Cervical screening guidelines	Resource Development	CDC, HRSA, FDA		2019
Characterize Emerging HIV Strains from Blood Donors and Patients	Resource Development	FDA	NIAID	2009
Clinical and Translational Serology Task Force (CTTF)	Resource Development	CDC, FDA, ASPR	NIAID	2021
Clinical Genome Resource and Genetic Testing Reference Material Program Collaborative Project (ClinGen and GeT-RM Collaborative Project)	Resource Development	CDC		2021
Clinical Vocabulary and Standards Development for Meaningful Use of Electronic Medical Records	Resource Development	CDC, CMS, FDA, ONC	NLM	2008
Combating Antibiotic Resistant Bacteria (CARB)	Resource Development	CDC, FDA	NHGRI, NIAID	2015
Congenital Heart Public Health Consortium	Resource Development	AHRQ, CDC	NHLBI	2008
Covid Serology Research and Results Tracker (SeroHub)	Resource Development	CDC	NIAID	2020
DailyMed	Resource Development	FDA		2005
Data Access for Grantees	Resource Development	CMS	NIA	2010
Dietary Supplement Label Database (DSLD)	Resource Development	FDA, CDC	NLM, OD/ DPCPSI/ ODSS, NCCIH, NCI	2004
Dietary Supplement Relevant - Special Interest Databases (purines, nitrates/nitrates)	Resource Development	FDA		2016
Drug Induced Liver Injury Network (DILIN)	Resource Development	FDA	NCI, NIDDK	2003
Emergency Preparedness, Medical Countermeasures (ASPR)	Resource Development	ASPR, CDC		2007
eRA Federal Shared Services (eRA)	Resource Development	AHRQ, FDA, SAMHSA, ASFR	OD/ OER	2016
Evidence-Based Cancer Control Programs (EBCCP)	Resource Development	CDC		2003
Federal Cervical Cancer Collaboration	Resource Development	HRSA	OD/ DPCPSI/ ORWH	2020
Federal Data Consortium on Pregnancy and Birth to 24 Months	Resource Development	CDC, FDA, OASH	NCATS, NCI, NHLBI, NIAID, NICHD, NIDDK, NIEHS, NIMHD, NINR, OD/ DPCPSI/ OBSSR, OD/ DPCPSI/ ONR, OD/ DPCPSI/ ORWH, OD/ ECHO	2016
Federal Interagency Forum on Aging Related Statistics	Resource Development	ACL, AHRQ, CDC, CMS, OS, SAMHSA	NIA	1986
Federal Interagency Traumatic Brain Injury Research Working Group (FITBIR Working Group)	Resource Development	AHRQ, CDC, HRSA, OS, SAMHSA	CIT, NCATS, NHLBI, NIA, NIAAA, NIBIB, NICHD, NIDA, NIDCD, NIGMS, NIMH, NINDS	2008
Full-text health-related documents at NLM (includes HSTAT) Bookshelf/Digital Repository	Resource Development	AHRQ, ATSDR, CDC, CMS, FDA, SAMHSA		1994
Funding Opportunity Announcement Module (FOAM)	Resource Development	ACF, ACL, AHRQ, CDC, CMS, FDA	CC, CIT, CSR, FIC, NCATS, NCCIH, NCI, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ AoU, OD/ DPCPSI, OD/ DPCPSI/ OAR, OD/ DPCPSI/ OBSSR, OD/ DPCPSI/ ODS, OD/ DPCPSI/ ORIP, OD/ DPCPSI/ ORWH, OD/ DPCPSI/ OSC, OD/ DPCPSI/ THRO, OD/ DPCPSI/ SGMRO, OD/ ECHO, OD/ IMOD, OD/ OCPL, OD/ OER, OD/ OIR, OD/ OIR/ OTT, OD/ OLPA, OD/ OM/ OB, OD/ ORS, OD/ OSP	2016
Genome in a Bottle Consortium (GIAB)	Resource Development	CDC, FDA	NHGRI, NCI	2013
Global Burden of Disease U.S. Health Disparities Working Group	Resource Development	CDC	NHLBI, NCI, NIA, OD/ DPCPSI/ OBSSR, NIAMS
Harmonization of Various Common Data Models and Open Standards for Evidence Generation (CDMH II)	Resource Development	FDA	NCATS, NCI, NLM	2016
HDPulse Dissemination and Adaptation Working Group	Resource Development	OASH
HHS Biannual Dual Use Research of Concern (DURC) Inventory	Resource Development	CDC, FDA, OS	CC, FIC, NCATS, NCCIH, NCI, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ DPCPSI, OD/ OSP	2012
HHS SARS-CoV-2 Immune Assay Testing of Ph3 clinical samples- Task Order	Resource Development	ASPR	NIAID	2020
Identification and Validation of ctDNA Quality Control Materials	Resource Development	FDA		2019
Interagency Rehabilitation and Disability Research Portfolio (IRAD)	Resource Development	ACL, CDC
Iodine Initiative	Resource Development	FDA, CDC	NICHD, OD/ DPCPSI/ ORWH	2011
Linkage of Surveillance, Epidemiology, End Results data to Centers for Medicare and Medicaid data (SEER-CMS)	Resource Development	CMS		1992
Logical Observation Identifiers Names and Codes (LOINC)	Resource Development	AHRQ, CDC, CMS, HRSA, IHS, IOS		2003
Making Medicaid Data More Accessible Through Common Data Models and FHIR APIs	Resource Development	ASPE, FDA		2021
Mapping of the Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT) and International Classification of Disease (ICD) Clinical Terminology	Resource Development	CDC, IOS		2004
Medical Imaging & Data Resource Center (MIDRC)	Resource Development	FDA	NCI, CC, NCATS, NHLBI, NLM	2020
Monthly Zika Vaccine Development Meeting	Resource Development	BARDA, FDA	NIAID	2018
MOU with FDA in Clinical Proteomics	Resource Development	FDA		2022
Multiagency Data Initiatives to Build Data Capacity for Patient-Centered Outcomes Research for COVID-19	Resource Development	AHRQ, ASPE	NCATS	2021
Multiple Chronic Conditions eCare Plan Project	Resource Development	AHRQ, ASPE	NIDDK	2019
My Family Health Portrait (MFHP)	Resource Development	CDC	NCI, NHGRI	2005
National Center for Advancing Translational Sciences (NCATS) Toolkit for Patient-focused Therapy Development	Resource Development	FDA	NCATS	2017
National Database for Antibiotic Resistant Organisms (NDARO)	Resource Development	CDC, FDA	CC, FIC, NCATS, NCI, NHLBI, NIA, NIAAA, NIAID, NIDA	2016
National Death Index Linkage Collaboration (NIH-NDI Agreement)	Resource Development	CDC	OD/ DPCPSI/ OBSSR, OD/ IMOD	2019
National Institute on Deafness and Other Communication Disorders (NIDCD) Directory of Organizations	Resource Development	AHRQ, CDC, CMS	NIDCD	1995
NCATS N3C Collaboration	Resource Development	FDA	NCATS	2020
NCI Enterprise Vocabulary Services (EVS) controlled terminology and standards development in collaboration with FDA and international regulatory agencies including NCI/FDA Memorandum of Understanding for Drug Related Information	Resource Development	FDA		2012
Newborn Screening Coding and Terminology Guide	Resource Development	CDC, FDA, HRSA, IOS, AHRQ	NHGRI, NHLBI, NICHD	2007
NGSP (formerly the National Glycohemoglobin Standardization Program) (NGSP)	Resource Development	CDC	CC, NIDDK	1996
NIH Guide for Grants and Contracts	Resource Development	AHRQ, CDC, FDA	CC, CIT, CSR, FIC, NCATS, NCCIH, NCI, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ DPCPSI, OD/ OER	2007
Oral Health in America: Advances and Challenges	Resource Development	OASH, FDA, CMS, CDC, HRSA, IHS, SAMHSA	NIAID, NIAAA, NIDA, NCATS	2018
Pain Assessments Web-Based Tool	Resource Development	CMS	CC, NCCIH, NINR, NIDCR, NIDA, NCI, NIA, NICHD, NIAMS, NIMH, NEI, NIGMS, NIDDK, NIAAA, NIMHD, NIBIB, NIDCD, NCATS, NHLBI, FIC
Predicting Drug Resistance with Machine Learning	Resource Development	ASPE	NIAID	2020
RxNorm	Resource Development	FDA		2005
SARS-CoV-2 Assay Development, Training, and Standardization	Resource Development	FDA	NIAID	2020
Sequencing Quality Control Phase 2 (SEQC2)	Resource Development	FDA	NLM, CIT, NCI, NHLBI, NIEHS	2017
Smokefree.gov Initiative	Resource Development	CDC, FDA, IHS	NIMHD	2003
State Cancer Profiles	Resource Development	CDC		2004
Sudden Death in the Young (SDY) Registry	Resource Development	CDC, HRSA	NHLBI, NINDS	2013
Support for Implementation of Agency Public Access Policies	Resource Development	AHRQ, CDC, FDA, IOS, ASPR	OD/ OSP	2013
Surveillance, Epidemiology, and End Results (SEER) Program	Resource Development	CDC		1973
Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Resource Development	AHRQ, CDC, CMS, FDA, HRSA, IHS, IOS, SAMHSA		2003
The United States Renal Data System (USRDS)	Resource Development	CMS, HRSA		1998
Toxicology in the 21st Century (Tox 21)	Resource Development	FDA	NCATS, NIEHS	2008
Trial Transparency via Registration and Results Reporting at NIH ClinicalTrials.gov	Resource Development	FDA	CC, NCATS, NCCIH, NCI, NCMHD, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, OD/ DPCPSI/ OBSSR, OD/ OER, OD/ OLPA, OD/ OSP	2000
Tumor Mutational Burden (TMB) Harmonization Project	Resource Development	FDA		2018
Unified Medical Language System Metathesaurus (UMLS)	Resource Development	AHRQ, CDC, CMS, FDA		1990
US Preventive Services Task Force (USPSTF)	Resource Development	AHRQ, CDC, CMS, HRSA, IHS, OASH, FDA, SAMHSA	NCI	2001
Value Set Authority Center (VSAC)	Resource Development	AHRQ, CDC, CMS, IOS		2012

Funding levels reported in the Fiscal Year 2022 Intra-Agency Collaborations Reporting System (CRS) may not be consistent with funding levels reported under the Estimates of Funding for Various Research, Condition, and Disease Categories (RCDC) at the NIH Office of Budget Website at http://report.nih.gov/categorical_spending.aspx. The current process, implemented in 2008 through the Research, Condition, and Disease Categorization (RCDC) system, uses sophisticated text data mining (categorizing and clustering using words and multiword phrases) in conjunction with NIH-wide definitions used to match projects to categories. RCDC use of data mining improves consistency and eliminates the wide variability in defining the research categories reported. The definitions are a list of terms and concepts selected by NIH scientific experts to define a research category. The research category levels represent the NIH’s best estimates based on the category definitions.