Resource Development

Collaboration Title	Collaboration Type	HHS Participating Agencies	NIH Participating Institutes/ Centers/ Office of the Director	Year Collaboration Originated
AccessGUDID	Resource Development	FDA	NLM	2015
AHRQ Registry of Patient Registries (RoPR)	Resource Development	AHRQ	NLM	2013
Alaska Native Tumor Registry	Resource Development	CDC, IHS	NCI	1999
America's Children Forum on Health and Family Statistics	Resource Development	SAMHSA	NIDA	1994
Antiretroviral Pregnancy Registry	Resource Development	CDC	NICHD	1989
Cancer Control Plan, Link, Act, Network with Evidence-Based Tools (P.L.A.N.E.T)	Resource Development	AHRQ, CDC	NCI	2003
CDC Integration with GrantSolutions	Resource Development	ACF, CDC	OD/ OER	2016
CDC-NIH Lyme Disease Serum Sample Repository	Resource Development	CDC, OS	NIAID	2008
Characterize Emerging HIV Strains from Blood Donors and Patients	Resource Development	FDA	NIAID	2009
CHEMM (Chemical Hazards Emergency Medical Management)	Resource Development	ATSDR, CDC, OS	NICHD, NLM	2008
ClinicalTrials.gov	Resource Development	FDA	CC, NCATS, NCCIH, NCI, NCMHD, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ DPCPSI/ OBSSR, OD/ OER, OD/ OLPA, OD/ OSP	2000
Combating Antibiotic Resistant Bateria (CARB)	Resource Development	CDC, FDA	NHGRI, NIAID, NLM	2015
Congenital Heart Public Health Consortium	Resource Development	AHRQ, CDC	NHLBI	2008
DailyMed	Resource Development	FDA	NLM	2005
Data Access for Grantees	Resource Development	CMS	NIA	2010
Developing Clinical Vocabulary Standards for Public Health Reporting	Resource Development	CDC	NLM	2010
Drug Induced Liver Injury Network (DILIN)	Resource Development	FDA	NIDDK	2003
Emergency Preparedness, Medical Countermeasures	Resource Development	OS	NCI	2007
Extracting Adverse Reactions and Indexing the Content of Structured Product Labels (SPLs)	Resource Development	FDA	NLM	2016
FDA Substance Registry System Public Interface	Resource Development	FDA	NLM	2009
Federal Interagency Forum on Aging Related Statistics	Resource Development	ACL, AHRQ, CDC, CMS, OS, SAMHSA	NIA	1986
Federal Interagency Traumatic Brain Injury Research (FITBIR) Working Group	Resource Development	AHRQ, CDC, HRSA, OS, SAMHSA	CIT, NCATS, NHLBI, NIA, NIAAA, NIBIB, NICHD, NIDA, NIDCD, NIGMS, NIMH, NINDS	2008
Federal RePORTER	Resource Development	ACF, ACL, AHRQ, CDC, FDA	OD/ OER	2008
Full-text health-related documents at NLM (includes HSTAT)	Resource Development	AHRQ, ATSDR, CDC, CMS, FDA, OSG, SAMHSA	NLM	1994
Funding Opportunity Announcement Module (FOAM)	Resource Development	ACF, ACL, AHRQ, CDC, CMS, FDA	CC, CIT, CSR, FIC, NCATS, NCCIH, NCI, NCMHD, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ AoU, OD/ DPCPSI, OD/ DPCPSI/ OAR, OD/ DPCPSI/ OBSSR, OD/ DPCPSI/ ODP, OD/ DPCPSI/ ODS, OD/ DPCPSI/ ORIP, OD/ DPCPSI/ ORWH, OD/ DPCPSI/ OSC, OD/ DPCPSI/ THRO, OD/ DPSCSI/ SGMRO, OD/ ECHO, OD/ IMOD, OD/ OCPL, OD/ OER, OD/ OIR, OD/ OIR/ OTT, OD/ OLPA, OD/ OM/ OB, OD/ ORS, OD/ OSP	2016
Genomic Surveillance at US Swine Fairs	Resource Development	CDC	FIC, NIAID	2009
GeT-RM Browser	Resource Development	CDC	NLM	2012
Harmonization of various Common Data Models and Open Standards for Evidence Generation	Resource Development	FDA	NCATS, NCI, NLM	2016
HHS Biannual Dual Use Research of Concern (DURC) Inventory	Resource Development	CDC, FDA, OS	CC, FIC, NCATS, NCCIH, NCI, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ DPCPSI, OD/ OSP	2012
Linkage of Surveillance, Epidemiology, End Results data to Centers for Medicare and Medicaid data	Resource Development	CMS	NCI	1990
Logical Observation Identifiers Names and Codes (LOINC)	Resource Development	AHRQ, CDC, CMS, HRSA, IHS, OS	NLM	2003
Mapping of the Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT) and International Classification of Disease (ICD) Clinical Terminology	Resource Development	CDC, OS	NLM	2004
Modernizing the Infrastructure for Capturing Drug Death Data and Enhancing Research on Opioid Poisoning using Death Certificates	Resource Development	CDC	NLM	2018
Monthly Zika Vaccine Development Meeting	Resource Development	BARDA, FDA	NIAID	2018
My Family Health Portrait	Resource Development	CDC	NCI, NHGRI	2005
National Amyotrophic Lateral Sclerosis (ALS) Registry	Resource Development	ATSDR, CDC	NINDS	2011
National Center for Advancing Translational Sciences (NCATS) Patient-focused Therapeutics Development Toolkit	Resource Development	FDA	NCATS	2017
National Database for Antibiotic Resistant Organisms (NDARO)	Resource Development	CDC, FDA	CC, FIC, NCATS, NCI, NHLBI, NIA, NIAAA, NIAID, NIDA	2016
National Death Index Linkage Collaboration	Resource Development	CDC	OD/ DPCPSI/ OBSSR, OD/ IMOD	2019
National Institute on Deafness and Other Communication Disorders (NIDCD) Directory of Organizations	Resource Development	AHRQ, CDC, CMS	NIDCD	1995
Natural History of Ebola Virus Zaire (Kikwit-7U) in Cynomolgus Macaques	Resource Development	FDA	NIAID	2018
NCI/FDA Memorandum of Understanding for Drug Related Information	Resource Development	FDA	CC, NCI, NHGRI, NHLBI, NIAID, NIDCR, NLM	2012
Newborn Screening Coding and Terminology Guide	Resource Development	CDC, FDA, HRSA, OS	NHGRI, NHLBI, NICHD, NLM	2007
NGSP (formerly the National Glycohemoglobin Standardization Program)	Resource Development	CDC	NIDDK	1996
NIH Guide for Grants and Contracts	Resource Development	AHRQ, CDC, FDA	CC, CIT, CSR, FIC, NCATS, NCCIH, NCI, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ DPCPSI, OD/ OER	2007
Northwest Portland Tribal Registry Project	Resource Development	IHS	NCI	1999
Partners in Information Access for the Public Health Workforce	Resource Development	AHRQ, CDC, HRSA, OS	NLM	1997
Pathogen Detection Project and Interagency Collaboration on Genomics for Food and Feed Safety (Gen-FS)	Resource Development	CDC, FDA	NLM	2015
Planning and Design for Post-Acute Care Assessment Instruments and Data Elements	Resource Development	CMS	NLM	2007
Promoting Semantic Interoperability of Laboratory Data Test Results	Resource Development	CDC, FDA	NLM	2015
Radiation Emergency Medical Management (REMM)	Resource Development	CDC, OS	NCI, NLM	2005
Research-Tested Intervention Program Database (RTIPs)	Resource Development	CDC	NCI	2003
RxNorm	Resource Development	FDA	NLM	2005
Smokefree.gov	Resource Development	CDC, FDA, IHS	NCI, NIMHD, OD/ DPCPSI/ OBSSR	2003
State Cancer Profiles	Resource Development	CDC	NCI	2004
Structured Data Capture (SDC) Initiative	Resource Development	AHRQ, CDC, CMS, FDA, HRSA, IHS, OS	NCATS, NCI, NLM	2013
Sudden Death in the Young (SDY) Registry	Resource Development	CDC, HRSA	NHLBI, NINDS	2013
Support for Implementation of Agency Public Access Policies	Resource Development	AHRQ, CDC, FDA, OS	NLM	2013
Surveillance, Epidemiology, and End Results (SEER) Program	Resource Development	CDC	NCI	1973
Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Resource Development	AHRQ, CDC, CMS, FDA, HRSA, IHS, OS, SAMHSA	NLM	2003
Terminology Standards for Medicare Assessment Instruments	Resource Development	CMS	NLM	2014
The United States Renal Data System (USRDS)	Resource Development	CMS, HRSA	NIDDK	1998
Tox 21	Resource Development	FDA	NCATS, NIEHS	2008
Traumatic Brain Injury Common Data Elements Standards - Interagency Steering Committee	Resource Development	CDC	CIT, NINDS	2008
Unified Medical Language System Metathesaurus (UMLS)	Resource Development	AHRQ, CDC, CMS, FDA	NLM	1990
US Preventive Services Task Force (USPSTF)	Resource Development	AHRQ	NCI, OD/ DPCPSI/ ODP	2001
Value Set Authority Center (VSAC)	Resource Development	AHRQ, CDC, CMS, OS	NLM	2012
Zika Supplement for Virus Tissue Tropism During Pregnancy	Resource Development	FDA, HRSA	NIAID	2016

Funding levels reported in the Fiscal Year 2019 Intra-Agency Collaborations Reporting System (CRS) may not be consistent with funding levels reported under the Estimates of Funding for Various Research, Condition, and Disease Categories (RCDC) at the NIH Office of Budget Website at http://report.nih.gov/categorical_spending.aspx. The current process, implemented in 2008 through the Research, Condition, and Disease Categorization (RCDC) system, uses sophisticated text data mining (categorizing and clustering using words and multiword phrases) in conjunction with NIH-wide definitions used to match projects to categories. RCDC use of data mining improves consistency and eliminates the wide variability in defining the research categories reported. The definitions are a list of terms and concepts selected by NIH scientific experts to define a research category. The research category levels represent the NIH’s best estimates based on the category definitions.