Resource Development

Collaboration Title	Collaboration Type	HHS Participating Agencies	NIH Participating Institutes/ Centers/ Office of the Director	Year Collaboration Originated
2020 Surgeon General's Report on Oral Health	Resource Development	OASH	NIDCR	2018
AccessGUDID	Resource Development	FDA, GDM	NLM	2015
Alaska Native Tumor Registry	Resource Development	CDC, IHS	NCI	1999
America's Children Forum on Health and Family Statistics	Resource Development	SAMHSA	NIDA	1994
Antiretroviral Pregnancy Registry	Resource Development	CDC	NICHD	1989
Bench to Bedside: Integrating Sex and Gender to Improve Human Health	Resource Development	FDA	OD/ DPCPSI/ ORWH	2017
Biomarkers, EndpointS, and other Tools (BEST) Resource Glossary	Resource Development	FDA	NCI	2016
Cancer Control Plan, Link, Act, Network with Evidence-Based Tools (P.L.A.N.E.T)	Resource Development	AHRQ, CDC	NCI	2003
CDC Integration with GrantSolutions	Resource Development	ACF, CDC	OD/ OER	2016
CDC-NIH Lyme Disease Serum Sample Repository	Resource Development	CDC, OS	NIAID	2008
Cervical screening guidelines	Resource Development	CDC, HRSA, FDA	NCI	2019
Characterize Emerging HIV Strains from Blood Donors and Patients	Resource Development	FDA	NIAID	2009
CHEMM (Chemical Hazards Emergency Medical Management)	Resource Development	ATSDR, CDC, IOS	NICHD, NLM	2008
Cherokee Cancer Registry (CNCR)	Resource Development	IHS	NCI	1997
Childhood Cancer Data Initiative (CCDI), National Childhood Cancer Registry (NCCR)	Resource Development	CDC	NCI	2020
ClinicalTrials.gov	Resource Development	FDA	CC, NCATS, NCCIH, NCI, NCMHD, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ DPCPSI/ OBSSR, OD/ OER, OD/ OLPA, OD/ OSP	2000
Combating Antibiotic Resistant Bacteria (CARB)	Resource Development	CDC, FDA	NHGRI, NIAID, NLM	2015
Congenital Heart Public Health Consortium	Resource Development	AHRQ, CDC	NHLBI	2008
DailyMed	Resource Development	FDA	NLM	2005
Data Access for Grantees	Resource Development	CMS	NIA	2010
Developing Clinical Vocabulary Standards for Public Health Reporting	Resource Development	CDC	NLM	2010
Drug Induced Liver Injury Network (DILIN)	Resource Development	FDA	NCI, NIDDK	2003
Emergency Preparedness, Medical Countermeasures	Resource Development	OS	NCI	2007
Evidence-Based Cancer Control Programs	Resource Development	CDC	NCI	2003
Extracting Adverse Reactions and Indexing the Content of Structured Product Labels (SPLs)	Resource Development	FDA	NLM	2016
Extraction of adverse drug events from MEDLINE indexing to support a multimodal model for pharmacovigilance.	Resource Development	FDA	NLM	2012
FDA Substance Registry System Public Interface	Resource Development	FDA	NLM	2009
Federal Interagency Forum on Aging Related Statistics	Resource Development	ACL, AHRQ, CDC, CMS, OS, SAMHSA	NIA	1986
Federal Interagency Traumatic Brain Injury Research (FITBIR) Working Group	Resource Development	AHRQ, CDC, HRSA, OS, SAMHSA	CIT, NCATS, NHLBI, NIA, NIAAA, NIBIB, NICHD, NIDA, NIDCD, NIGMS, NIMH, NINDS	2008
Federal RePORTER	Resource Development	ACF, ACL, AHRQ, CDC, FDA	OD/ OER	2008
Full-text health-related documents at NLM (includes HSTAT) Bookshelf/Digital Repository	Resource Development	AHRQ, ATSDR, CDC, CMS, FDA, SAMHSA	NLM	1994
Funding Opportunity Announcement Module (FOAM)	Resource Development	ACF, ACL, AHRQ, CDC, CMS, FDA	CC, CIT, CSR, FIC, NCATS, NCCIH, NCI, , NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ AoU, OD/ DPCPSI, OD/ DPCPSI/ OAR, OD/ DPCPSI/ OBSSR, OD/ DPCPSI/ ODS, OD/ DPCPSI/ ORIP, OD/ DPCPSI/ ORWH, OD/ DPCPSI/ OSC, OD/ DPCPSI/ THRO, OD/ DPCPSI/ SGMRO, OD/ ECHO, OD/ IMOD, OD/ OCPL, OD/ OER, OD/ OIR, OD/ OIR/ OTT, OD/ OLPA, OD/ OM/ OB, OD/ ORS, OD/ OSP, ODP	2016
Genome in a Bottle Consortium (GIAB)	Resource Development	CDC, FDA	NCI, NHGRI, NLM	2013
Genomic Surveillance at US Swine Fairs	Resource Development	CDC	FIC, NIAID	2009
GeT-RM Browser	Resource Development	CDC	NLM	2012
Global Initiative for Cancer Registry Development	Resource Development	CDC	NCI	2014
Harmonization of various Common Data Models and Open Standards for Evidence Generation	Resource Development	FDA	NCATS, NCI, NLM	2016
HHS Biannual Dual Use Research of Concern (DURC) Inventory	Resource Development	CDC, FDA, OS	CC, FIC, NCATS, NCCIH, NCI, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ DPCPSI, OD/ OSP	2012
HHS SARS-CoV-2 Assay Development Task orders	Resource Development	BARDA	NIAID	2020
HHS SARS-CoV-2 Immune Assay Testing of Ph3 clinical samples- Task Order	Resource Development	BARDA	NIAID	2020
HHS Zika Vaccine Testing Task Orders Coordination	Resource Development	BARDA	NIAID	2016
HHS-Wide Stigma Workgroup	Resource Development	CDC, FDA, HRSA, IHS, SAMHSA	NIMH	2019
IAA with FDA - Using big data to compare SARS-CoV-2 infection and therapeutic efficacy between human lung on a chip and animal model testing	Resource Development	FDA	NIAID	2020
Improving Steps in the Development and Assessment of Live Microbiome-Based Products: Fecal Microbiota for Transplantation (FMT) and Live Biotherapeutic Products (LBPs)	Resource Development	FDA	NIAID	2019
Leprosy Research Support in Armadillos (Dasypus Novemcinctus)	Resource Development	HRSA	NIAID	2002
Linkage of Surveillance, Epidemiology, End Results data to Centers for Medicare and Medicaid data	Resource Development	CMS	NCI	1990
Logical Observation Identifiers Names and Codes (LOINC)	Resource Development	AHRQ, CDC, CMS, HRSA, IHS, IOS	NLM	2003
Mapping of the Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT) and International Classification of Disease (ICD) Clinical Terminology	Resource Development	CDC, IOS	NLM	2004
Microphysiological Systems for COVID Research (MPSCoRe): a joint working group to support global COVID-19 tissue chip activities	Resource Development	FDA	NIAID, NIEHS, NCATS	2020
Monthly Zika Vaccine Development Meeting	Resource Development	BARDA, FDA	NIAID	2018
Multiple Chronic Conditions eCare Plan Project	Resource Development	AHRQ, ASPE	NIDDK	2019
My Family Health Portrait (MFHP)	Resource Development	CDC	NCI, NHGRI	2005
National Amyotrophic Lateral Sclerosis Registry	Resource Development	ATSDR, CDC	NINDS	2011
National Center for Advancing Translational Sciences (NCATS) Patient-focused Therapeutics Development Toolkit	Resource Development	FDA	NCATS	2017
National Database for Antibiotic Resistant Organisms (NDARO)	Resource Development	CDC, FDA	CC, FIC, NCATS, NCI, NHLBI, NIA, NIAAA, NIAID, NIDA	2016
National Death Index Linkage Collaboration (NIH-NDI Agreement)	Resource Development	CDC	OD/ DPCPSI/ OBSSR, OD/ IMOD	2019
National Institute on Deafness and Other Communication Disorders (NIDCD) Directory of Organizations	Resource Development	AHRQ, CDC, CMS	NIDCD	1995
National Response Team (NRT)	Resource Development	ASPR, ATSDR, CDC	NIEHS	2003
Newborn Screening Coding and Terminology Guide	Resource Development	CDC, FDA, HRSA, IOS	NHGRI, NHLBI, NICHD, NLM	2007
NGSP (formerly the National Glycohemoglobin Standardization Program)	Resource Development	CDC	NIDDK	1996
NIH Guide for Grants and Contracts	Resource Development	AHRQ, CDC, FDA	CC, CIT, CSR, FIC, NCATS, NCCIH, NCI, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM, OD/ DPCPSI, OD/ OER	2007
NINDS Common Data Elements Program	Resource Development	CDC, FDA	CIT, NINDS, NICHD, NEI, NHGRI, NCATS, NIA, NIMH, NIEHS, NIGMS, NIBIB, NIDDK, NIDCR, NINR, NHLBI	2006
Northwest Portland Tribal Registry Project	Resource Development	IHS	NCI	1999
Office of Secretary, Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) PCORTF Projects titled, “Data Capacity for PCOR through eCare Planning for People with Multiple Chronic Conditions & Disability.”	Resource Development	ACL, AHRQ, IHS	NCI, NHLBI, NIA, NIDDK, NLM	2017
Pathogen Detection Project and Interagency Collaboration on Genomics for Food and Feed Safety (Gen-FS)	Resource Development	CDC, FDA	NLM	2015
PCORTF Frailty & Functional Disabilities Project Working Group	Resource Development	ASPE, AHRQ, CDC, CMS	NIA	2019
Pillbox	Resource Development	FDA	NLM	2009
Planning and Design for Post-Acute Care Assessment Instruments and Data Elements	Resource Development	CMS	NLM	2007
Project ECHO for Cancer Research and Control	Resource Development	CDC	NCI	2018
Promoting Semantic Interoperability of Laboratory Data Test Results	Resource Development	CDC, FDA	NLM	2015
Quantum Barcoding for analysis of Ebola infection	Resource Development	FDA	NIAID	2019
Radiation Emergency Medical Management (REMM)	Resource Development	CDC, IOS, ASPR	NCI, NLM	2005
Research IND Portal ( Pilot)	Resource Development	FDA	NCI	2019
RxNorm	Resource Development	FDA	NLM	2005
SARS-CoV-2 Assay Development, Training, and Standardization	Resource Development	FDA	NIAID	2020
SARS-CoV-2 Sequencing for Public Health Emergency Response, Epidemiology and Surveillance (SPHERES)	Resource Development	CDC	NLM	2020
Smokefree.gov	Resource Development	CDC, FDA, IHS	NCI, NIMHD, OD/ DPCPSI/ OBSSR	2003
State Cancer Profiles	Resource Development	CDC	NCI	2004
Structured Data Capture (SDC) Initiative	Resource Development	AHRQ, CDC, CMS, FDA, HRSA, IHS, IOS	NCATS, NCI, NLM	2013
Sudden Death in the Young (SDY) Registry	Resource Development	CDC, HRSA	NHLBI, NINDS	2013
Support for Implementation of Agency Public Access Policies	Resource Development	AHRQ, CDC, FDA, IOS	NLM, OD/ OSP	2013
Surveillance, Epidemiology, and End Results (SEER) Program	Resource Development	CDC	NCI	1973
Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Resource Development	AHRQ, CDC, CMS, FDA, HRSA, IHS, IOS, SAMHSA	NLM	2003
Terminology Standards for Medicare Assessment Instruments	Resource Development	CMS	NLM	2014
The Assay Guidance Manual	Resource Development	FDA	NCATS	2020
The United States Renal Data System (USRDS)	Resource Development	CMS, HRSA	NIDDK	1998
Tox 21	Resource Development	FDA	NCATS, NIEHS	2008
Unified Medical Language System Metathesaurus (UMLS)	Resource Development	AHRQ, CDC, CMS, FDA	NLM	1990
US Preventive Services Task Force (USPSTF)	Resource Development	AHRQ	NCI, ODP	2001
Value Set Authority Center (VSAC)	Resource Development	AHRQ, CDC, CMS, IOS	NLM	2012

Funding levels reported in the Fiscal Year 2020 Intra-Agency Collaborations Reporting System (CRS) may not be consistent with funding levels reported under the Estimates of Funding for Various Research, Condition, and Disease Categories (RCDC) at the NIH Office of Budget Website at http://report.nih.gov/categorical_spending.aspx. The current process, implemented in 2008 through the Research, Condition, and Disease Categorization (RCDC) system, uses sophisticated text data mining (categorizing and clustering using words and multiword phrases) in conjunction with NIH-wide definitions used to match projects to categories. RCDC use of data mining improves consistency and eliminates the wide variability in defining the research categories reported. The definitions are a list of terms and concepts selected by NIH scientific experts to define a research category. The research category levels represent the NIH’s best estimates based on the category definitions.